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Taking back control
As you will know from my previous blog post a couple of days ago I was withdrawn from university after being on sick leave for a year because of my Dystonia. I had a few days of “why me” and “I want to...
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Basking in Positivity
The last few days have been truly fabulous! I got into college to study a Level 3 diploma in reflexology, had a meeting with the learning support team who were completely wonderful about my Dystonia,...
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Start of Something New
Happy, on top of the world, ecstatic, over the moon. Put this combination of emotions in to one and that is me now. Today has been a fantastic success. I attended my first day at college and loved...
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Breath of Fresh Air
After Tuesday nights functional paralysis drama, I am pleased to report that my little Dystonia alien has not scared me witless with a repeat episode (so far). In fact other than a light and pain...
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Testing the Boundaries
Since I became ill last summer, I have tried to be careful in everything I do. My body has limits and I have to learn to respect that. However it’s hard to keep within the limits when they keep...
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Worrying
I feel like I am balancing on the knifes edge and that at any moment I could fall. My Dystonia alien and my Lyme Disease had really managed to lull me into a sense of ‘normality’, and over this past...
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Oromandibular Dystonia
Since last Friday my Oromandibular (jaw) Dystonia and tremor has been rather bad. These spasms leave my jaw extremely distorted and the pain is constant. Unfortunately my Botox is a week later than...
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Dress for Dystonia
As I mentioned the other day I did some fundraising and campaigning at my college this week to raise awareness of Dystonia. On the Dystonia Society’s website they have a list of fundraising ideas one...
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Looking Forward
At the start of this week I had an unusual amount of extreme spasms, these had been triggered by a medication and have now settled down. At the time it would have been sensible to have spent the day in...
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Beyond The Abyss
When I left university, I didn’t have much hope. I associated my midwifery training, the potential that it held, as a measure of success in life. Being unable to physically do the job anymore because...
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